The Cauldron: A Pagan Forum (Archive Board)
June 16, 2021, 04:48:28 am *
Welcome, Guest. Please login or register.

Login with username, password and session length
News: This is our Read Only Archive Board (closed to posting July 2011). Join our new vBulletin board!
 
  Portal   Forum   Help Rules Search Chat (Mux) Articles Login Register   *

Welcome, Guest. Please login or register.
June 16, 2021, 04:48:28 am

Login with username, password and session length
Donate!
The Cauldron's server is expensive and requires monthly payments. Please become a Bronze, Silver or Gold Donor if you can. Donations are needed every month. Without member support, we can't afford the server.
TC Staff
Important Information about this Archive Board
This message board is The Cauldron: A Pagan Forum's SMF Archive Board. It is closed to new memberships and to posting, but there are over 250,000 messages here that you can still search and read -- many full of interesting and useful information. (This board was open from February 2007 through June 2011).

Our new vBulletin discussion board is located at http://www.ecauldron.com/forum/ -- if you would like to participate in discussions like those you see here, please visit our new vBulletin message board, register an account and join in our discussions. We hope you will find the information in this message archive useful and will consider joining us on our new board.
Pages: 1 [2]   Go Down
  Add bookmark  |  Print  
Author Topic: Strange migraine  (Read 8651 times)
Aster Breo
SIG Coordinator
Staff
Grand Adept Member
***
Last Login:January 29, 2013, 09:32:22 pm
United States United States

Religion: Feral Brighideach
TCN ID: Aster Breo
Posts: 5260


Avatar byJuni & Dania

Blog entries (0)


« Reply #15: June 19, 2011, 02:06:20 pm »

Has anyone had any similar experiences with migraine? If so, how did you get rid of it? Do you know what caused it to change form and last so long? Can anyone suggest any alternative actions I can take?

I've had the pleasure of migraines for most of my life.  I had them as a child, I had them as a teenager, I've had them my entire adult life.  I've been dealing with a literally constant headache for several years now.  While I agree with the other posters' suggestions that you push for more complete testing, I also have to say that your symptoms sound like they are well within the range of "migraine."  Migraines can manifest in an alarming variety of symptoms, including the pressure and visual problems you describe.  There are also gastrointestinal and abdominal symptoms associated with migraines, as well as links to heart conditions, etc.  I have a few different kinds of headaches and uncomfortable sensations, along with a fair amount of numbness in various places, and several different aura symptoms. 

Everyone is different, though.  Not responding to triptans or beta blockers does not mean you're not experiencing migraines.  I've tried pretty much every possible medication for migraines, and none work for me.  Some of them worked for a while, but then stopped working for some reason.  F'ex, I had excellent luck with Topamax for a few years, until it started causing nerve problems and then made me suicidal.  Acupuncture also helped for a couple of years.  The only things that help me now are pain meds (morphine and Nucynta), muscle relaxants, and physical therapy.  I'll be giving botox a try as soon as my neurologist gets the insurance company to agree.

It's also possible that something else is causing your new symptoms.  It's definitely not unreasonable to ask your neurologist to run more tests.  I have no idea which tests would be appropriate for you -- whether you need an MRI, a CT scan, an EEG, blood work, or any of the many other kinds of neurological and physical tests.  I recently developed a completely new (for me) and kind of headache, associated with other somewhat alarming symptoms.  My neurologist has ordered an EEG to try to determine if this is a new migraine symptom or something else going on.

In the meantime, though, while you and your dr are figuring it out, you could try pain relief measures like pain meds, ice packs, heating pads, massage therapy, etc.  Think about whether anything changed in your routine prior to developing the new symptoms -- change in diet, sleep patterns, medications for other health issues, cleaning products, perfumes, etc.  Barometric pressure changes are a well known migraine trigger, too.  For me, that means not only weather systems, but also pressure changes during plane and subway rides.  Dehydration can also be a problem.  Sometimes it's a really small thing.

You might also consider talking to your doctor about physical therapy.  It's quite possible that you might have migraines AND something else.  In my case, in addition to well documented migraines that clearly run in my family (my grandmother, mother, brother, uncle, and both daughters), I also have a significant leg length discrepancy that wasn't discovered until I started a new type of physical therapy last summer.  Essentially, I've been misaligned all my life, and that has caused various problems that contribute to the headaches.  TMJ and other muscle tension kinds of things are also huge contributors.  Physical therapy is the bright spot of my week, even though the relief doesn't last anywhere near long enough.   Cheesy

There are also lots of other medications your neurologist might want you to try, although most have side effects.  Ask about things like nutritional supplements, dietary changes, and acupuncture, too.  And, since you're having vision problems, a trip to the eye doctor might be in order.

And, depending on your specific diagnosis, there are some experimental treatments going on that might help you.  F'ex, there's a headache clinic at the Jefferson Hospital in Philadelphia that has developed a new migraine treatment using an in-patient course of IV lidocaine.  My neurologist, who is currently at Georgetown University Hospital, worked at Jefferson for a while and has suggested I give the lidocaine treatment a try.  I've been resisting it because Philly is about a three-hour drive from where I live, so I'd have to be away from my family for a few weeks for the in-patient treatment. 

I don't know what kinds of treatments and trials are available in your neck of the woods, but it's worth asking your neurologist.  You might also consider trying a different doctor, if this one isn't helping you.  I've had better luck with neurologists at university hospitals than with doctors in private practice. 

Anyway, I hope these new symptoms blow over, and that you're able to find something that helps your migraines!  FWIW, I feel your pain!   Wink

~ Aster



Logged

"The single biggest problem with communication is the illusion that it has taken place."  ~ George Bernard Shaw

Welcome, Guest!
You will need to register and/or login to participate in our discussions.

Read our Rules and Policies and the Quoting Guidelines.

Help Fund Our Server? Donate to Lyricfox's Cancer Fund?

Jenett
High Adept Member
******
Last Login:February 23, 2020, 06:56:44 pm
United States United States

Religion: Priestess in initiatory religious witchcraft tradition
Posts: 2506


Blog entries (1)

WWW

Ignore
« Reply #16: June 19, 2011, 02:23:51 pm »

Of course I do!  http://www.headaches.org/pdf/Monograph.pdf is the most easily accessible source; there are a plethora available with a very simple search.

Actually, while that's a useful document, it doesn't seem to actually address my question, which is a source for the idea that if triptans don't work, it's not a migraine.

(For people who don't want to download/read: it's a nice diagnostic overview of the differences between types of headaches, though it notes that migraines are often *underdiagnosed* (consistent with my other reading and experience) rather than overdiagnosed, but that it's worth looking at the diagnostics for sinus headaches and for tension-type headaches carefully.)

As someone who gets both tension-type headaches and migraines (though both pretty rarely these days, since I figured out lifestyle things that work for me in preventing them), it's sort of nice to see it laid out that clearly. [more note on this at the bottom].

But again, doesn't address the specific meds-as-diagnostic issue. The closest I can see is "Migraines respond well to the triptans, but are unlikely to respond to the broad-spectrum oral antibiotics effective in sinusitis." on page 5, which is not quite the same thing. (And of course, doesn't mean that an individual person will respond equally well to all triptan variants.)

Additional note in case it helps anyone:
For me, the tension-type headaches are bilateral, not pulsating, and generally helped by things that reduce neck, shoulder, or upper back tension (anything from a hot bath to a cold pack to specific yoga-type poses, chiropractic work, or my current Feldenkrais lessons.)

Migraines don't respond to those things (I might feel a little better while doing them, but it doesn't make the headache go away), plus I have a cluster of neurological gunkiness that isn't there with the tension headaches. (I get very clumsy and my reflexes go wonky to the extent that I really try not to drive, I am somewhere between 'food is entirely uninteresting' and nausea for an extended period of time (a day or three), I have both light and sound sensitivity (and both make the migraine worse).

In other words, very standard diagnostic markers, except for the fact that (since treatment with blood pressure medications about 10 years ago), I get about 10 parts aura and neurological glitchiness to one part actual pain (which is somewhere between a 2 and a 5 on most pain scales: enough I notice, but not so much I couldn't function if the pain were the only issue). I still can't function well, but it hurts a lot less than it used to. (Which was a perfectly fine outcome, honestly.) And I can do things like go into a dark quiet room and read, as opposed to go into a dark quiet room and lie there in misery, which I consider a plus.

I mention mostly in case it's useful to anyone else, and as a "some stuff can change migraine progression" - in my case, it was a combo of the meds and some other things in my life (around this time, I also started serious Craft training, and since for me certain kinds of being ungrounded/uncentered turn out to be a migraine trigger, learning how to handle that much more efficiently was very helpful.)

But my triggers have definitely shifted over time (the most recent and annoying one is weather pressure systems, specifically the 6-12 hours right before a thunderstorm), and the last few years, I get a lot more nausea than I used to when I was younger.
Logged

Blog: Thoughts from a threshold: http://gleewood.org/threshold
Info for seekers: http://gleewood.org/seeking
Pagan books and resources: http://gleewood.org/books
catherine
Master Member
****
Last Login:November 08, 2013, 10:51:52 am
United States United States

Religion: temporarily unavailable, renovations in progress
Posts: 332

Gravatar

Blog entries (0)



Ignore
« Reply #17: June 19, 2011, 08:16:43 pm »


Not a direct response to you, Jenett. Or at least not only to you. I'm just hanging my post here.

Luckily, I've only had maybe 4 or 5 migraines in my life so far. It's the same for my sister. Our mom is a different story. She has suffered from horrible migraines her whole life. The kind that keep her in bed for days. Unfortunately, she's not really big on doctors if she can avoid them, so she never did get any real treatment.

Anyway, I had no idea that barometric pressure could have anything to with it, or that botox could help at all! This is all really great info to have in case they ever get worse for us (me and sis), and now I have a lot of useful information to pass on to my mom. Thanks so much!

Logged
Rocquelaire
Journeyman
***
Last Login:November 20, 2011, 10:55:54 am
United Kingdom United Kingdom

Religion: Solitary Religious Witch
Posts: 189


Blog entries (0)



Ignore
« Reply #18: June 24, 2011, 04:35:19 am »


First of all, thank you to everyone who has responded. I just thought I'd give you all an update. My symptoms are getting worse with occassional faint spells and tunnelling of my vision. My thoughts are fuzzy, I can't think as fast as usual and I find myself forgetting what I'm doing / saying more often than usual. For example I open the fridge and have no idea what I wanted. Or get halfway through a sentence and have no idea what I was talking about or what I was going to say.

My dr is concerned that after three weeks I'm getting worse instead of better so she's pushing through the referral to a neurologist as urgent. The NHS is a wonderful thing but waiting times are not so hopefully this will speed the process up a bit. She also told me to try and take it easy which is difficult because I'm a busy person lol. My fiancé is starting to get worried and I have to be honest so am I. I'm trying not to think about all the big scary things it could be but it's tough.

Following on from Aster's suggestion I got my eyes checked - they're fine. I can't think of any big changes before my symptoms started and I'm trying to drink more water in case it's dehydration. I've started a migraine diary keeping track of everything I can think of while this is going on.

Jenett, I read those essays and they were really helpful. Thanks for posting the link. Your posts are always so helpful.

Thanks again everyone and any other suggestions are still welcome Smiley.

Rocquelaire
Logged
UlsterYank
Master Member
****
Last Login:January 21, 2013, 02:18:03 pm
Ireland, Republic of Ireland, Republic of

Religion: Traidisiúnachais Gaelach, Witchcraft, Thelema
TCN ID: UlsterYank
Posts: 292


Déan mar is Toil leat, a bheas mar iomlán an Dlí

Blog entries (0)

anmericeanach
WWW

Ignore
« Reply #19: June 24, 2011, 06:31:45 am »

Hi all,

The last few weeks I've been feeling off. I've been nauseaus and had a strange feeling of pressure inside my head along with periodic blurring of my vision. Last week I went to see my Dr and she said it's probably a migraine. I have a history of migraine for the last 14 years and this is completely different to anything I've experienced before. She gave me a prescription for Imigran which I took but it didn't help my symptoms and gave me nerve sensitivity which left my scalp and mouth in pain at the slightest touch. I went back to my Dr on Friday and she has now prescribed beta blockers which I have been taking twice a day since although there are no changes in my symptoms yet and these tablets are making me incredibly sleepy. She has also now referred me to a neurologist as she is concerned about the length of time this gas persisted.

Has anyone had any similar experiences with migraine? If so, how did you get rid of it? Do you know what caused it to change form and last so long? Can anyone suggest any alternative actions I can take? The original symptoms are unpleasant and distracting and the sleepiness from the tablets is slowing me down.

Any comments will be greatly appreciated Smiley.

Rocquelaire   

How odd, I've been experiencing the same thing. I stayed over in Dublin the 18th and 19th, because we had an O.T.O meet, and a coven Sabbat the next day. After the meet we drank every ounce of booze in the house until the sun came up, and I got the worst hangover I've had in a while.(Could barely keep tea down) Felt like absolute crap, but persevered throughout the day until the Sabbat. (My head was pounding, and I had the shakes cutting wood for the fire) Had wonderful circle, but didn't make it home until 2 in the morning before having to get up at 6 for work.

I've felt like Sunday morning this whole week. Got plenty of sleep Monday night, but have had a continuous migraine keeping me dizzy. Tablets, sleep, herbal teas& meditation couldn't lift it. I went to the doctor yesterday, and discovered I had high blood pressure(A first for me, it was perfect 6 months ago). I'm to rest off of work for two days plus the weekend, and take tablets every 6 hours. A lot of it is probably stress from my job. Looking through my magickal journal, my diet hasn't been the best, as well as my sleep pattern. Binge drinking really takes it's toll on me now as well. After a good night sleep knowing I didn't have to go to work today, and laying off of the martial art training for a week. I took a relaxing bath, and did a good Lesser Banishing Ritual of the Pentagram, followed by a short meditation, ending in a 5 cycle 10-20 Pranayama breathe cycle, and now feel like a brand new man!

My pain has been mostly behind my eyes, and I'm chancing my luck staring at a computer screen right now, but I'd suggest doing a process of elimination and pin point everything you do in a day. Going by the beta blockers, your blood pressure could be up the left like mine too. I've been putting coconut milk&cinnamon in my tea, laying off of the milk&sugar, and also cutting salt out as well. Just take it easy and relax this weekend Rocquelaire.
Logged

"Remember all ye that existence is pure joy; that all the sorrows are but as shadows; they pass & are done; but there is that which remains" AL II:9
Aster Breo
SIG Coordinator
Staff
Grand Adept Member
***
Last Login:January 29, 2013, 09:32:22 pm
United States United States

Religion: Feral Brighideach
TCN ID: Aster Breo
Posts: 5260


Avatar byJuni & Dania

Blog entries (0)


« Reply #20: June 24, 2011, 11:11:34 pm »

I just thought I'd give you all an update.

I'm really glad to hear that your dr is sending you to a neurologist ASAP.  Neurological symptoms that get so markedly worse so quickly are scary!  You definitely need to be checked out.  I wouldn't be surprised if they have you get an MRI and/or CT scan and/or EEG.  Unfortunately, those symptoms can also be linked to things that don't show up on tests.  So frustrating.

One question the neurologist will ask you (in addition to your migraine diary) is if you've ever had any head trauma.  (I had similar symptoms to yours for years, and they were just part of my migraine syndrome.  But now that they've changed -- after a hear trauma -- they need to get checked out again.)

Good luck!

~ Aster
Logged

"The single biggest problem with communication is the illusion that it has taken place."  ~ George Bernard Shaw

Donor Ad: Become a Silver or Gold Donor to get your ad here.

Tags:
Pages: 1 [2]   Go Up
  Add bookmark  |  Print  
 
Jump to:  
  Portal   Forum   Help Rules Search Chat (Mux) Articles Login Register   *

* Share this topic...
In a forum
(BBCode)
In a site/blog
(HTML)


Related Topics
Subject Started by Replies Views Last post
Worst migraine
Prayer and Energy Requests
Lost-in-Translation 5 2510 Last post October 02, 2007, 07:11:44 pm
by nemesisfirestorm
>*MIGRAINE*< « 1 2 »
Health and Medicine
Mandi 16 4393 Last post January 25, 2008, 08:32:40 am
by ShadowScape
Migraine - good news for once!
Health and Medicine
Vale 14 4983 Last post November 14, 2008, 06:16:14 pm
by FierFlye
Am I strange? « 1 2 »
Paganism For Beginners
Davik 16 5410 Last post March 11, 2010, 09:34:22 pm
by Aster Breo
Strange Encounters with Strange Deities?
Gods, Goddesses, and Mythology
Vajrakaya 1 1939 Last post May 04, 2011, 04:27:31 pm
by OmPom
EU Cookie Notice: This site uses cookies. By using this site you consent to their use.


Powered by MySQL Powered by PHP Powered by SMF 1.1.21 | SMF © 2006-2008, Simple Machines
TinyPortal v0.9.8 © Bloc
Valid XHTML 1.0! Valid CSS!
Page created in 0.072 seconds with 43 queries.