The Cauldron: A Pagan Forum (Archive Board)
September 28, 2022, 11:45:14 am *
Welcome, Guest. Please login or register.

Login with username, password and session length
News: This is our Read Only Archive Board (closed to posting July 2011). Join our new vBulletin board!
 
  Portal   Forum   Help Rules Search Chat (Mux) Articles Login Register   *

Welcome, Guest. Please login or register.
September 28, 2022, 11:45:14 am

Login with username, password and session length
Donate!
The Cauldron's server is expensive and requires monthly payments. Please become a Bronze, Silver or Gold Donor if you can. Donations are needed every month. Without member support, we can't afford the server.
TC Staff
Important Information about this Archive Board
This message board is The Cauldron: A Pagan Forum's SMF Archive Board. It is closed to new memberships and to posting, but there are over 250,000 messages here that you can still search and read -- many full of interesting and useful information. (This board was open from February 2007 through June 2011).

Our new vBulletin discussion board is located at http://www.ecauldron.com/forum/ -- if you would like to participate in discussions like those you see here, please visit our new vBulletin message board, register an account and join in our discussions. We hope you will find the information in this message archive useful and will consider joining us on our new board.
Pages: [1] 2   Go Down
  Add bookmark  |  Print  
Author Topic: Having a tough time at the moment....positive energy needed!!  (Read 5009 times)
SilverWillow
Senior Apprentice
**
Last Login:June 27, 2010, 04:00:17 am
United Kingdom United Kingdom

Religion: Mix at the moment! Spiritualist, but always had an interest in Paganism, particularly Wicca
Posts: 45


Blog entries (0)



Ignore
« Reply #7: July 28, 2009, 06:33:56 pm »

His diagnosis has gone back and forth between Crohn's and IBD, depending on the doctor and the circumstances.  He isn't on any long-term medications because every flare-up presents as something different, from ulcers to diverticulitis to lesions in various places.  It started when he was a teenager, and he was about 20 when Crohn's was first mentioned.

He hasn't had any major surgeries but a host of minor procedures, usually having to do with scar tissue, lesions, and blockages of various sorts.  Moving to contract work doesn't help with emergency hospitalizations, of course, but it lets him schedule other things for his 'down time'.  And, as I said, his flare-ups have decreased over the years so it's only every couple of years now.  He's in his late thirties.

It can't always be 'managed', so I'm not going to give you any advice about diet and stress, etc., especially since, as a nurse, you've probably done all your own homework.  It will flare up at the most inconvenient and stressful times, and having plans in place for how to cope definitely helps.  Awareness actually seems to decrease the severity in some cases.  DH treats it very matter-of-factly with his employers and has generally gotten understanding and equitable treatment.  It helps that he's very good at his job. Cheesy

We know a lot of other sufferers, who range from not being able to work at all to barely being slowed down by it.  It's like any other permanent condition - recognize that it exists and work around it as much as possible.  Don't apologize or whinge when you have to take time to deal with it, and make your work the rest of the time so good that your employers will simply look forward to getting you back when the flare-up is over.

Easy to say, and easier to do if it wasn't so painful, I know.  There isn't any 'standard' to measure yourself against, or any guaranteed treatment, but it can be worked with.

Absent

Thanks for your support Smiley  Sounds like your husband has had a rough time in the past  ((hugs)).

I guess i'm still getting used to having the condition and having to work around it and recognise my limitations during a flare up, as i've only been diagnosed for three years now and so far haven't had any major problems (when I say major I refer to surgery of any kind). 

I miss being myself.  It's just a question of waiting for the azathioprine to kick in, I know it works for me because I've been on it before.  They had to take me off it last year because I got glandular fever and the azathioprine had reduced my white cells so much I wasn't fighting it.  So I'm back on it now under the condition they can test my blood every two weeks.

I just wish more people were aware of what Crohn's is and what it involves, it really gets to me when people tell me i've just got upset stomach and that i'm being soft.

Xx
Logged

What will be, Will be.

Welcome, Guest!
You will need to register and/or login to participate in our discussions.

Read our Rules and Policies and the Quoting Guidelines.

Help Fund Our Server? Donate to Lyricfox's Cancer Fund?

Tags:
Pages: [1] 2   Go Up
  Add bookmark  |  Print  
 
Jump to:  
  Portal   Forum   Help Rules Search Chat (Mux) Articles Login Register   *

* Share this topic...
In a forum
(BBCode)
In a site/blog
(HTML)


Related Topics
Subject Started by Replies Views Last post
Positive Job Energy
Prayer and Energy Requests
Aster Breo 4 2353 Last post March 19, 2007, 10:31:08 pm
by RandallS
In need of some ... positive energy
Prayer and Energy Requests
Faraetaildreams 9 3421 Last post August 17, 2007, 05:33:34 pm
by gayars
Need positive energy for a family in need
Prayer and Energy Requests
Guenthecat 3 1575 Last post July 24, 2007, 05:25:11 pm
by RandallS
Positive, Prosperous Energy Needed
Prayer and Energy Requests
Letheus 2 1513 Last post October 29, 2009, 03:40:45 pm
by Letheus
Positive energy/prayers needed please. I'm scared. « 1 2 »
Prayer and Energy Requests
Straycat 24 10932 Last post July 30, 2010, 06:09:42 pm
by Petrichor
EU Cookie Notice: This site uses cookies. By using this site you consent to their use.


Powered by MySQL Powered by PHP Powered by SMF 1.1.21 | SMF © 2006-2008, Simple Machines
TinyPortal v0.9.8 © Bloc
Valid XHTML 1.0! Valid CSS!
Page created in 0.136 seconds with 37 queries.